Quick update...

Hi everybody!

As you see in the picture below, things have not been too fun around here! The RSD has spread to pretty much full body.

We went to the Dr. Patin in Miami (who did the ketamine) and his first response was that I am a very, very sick girl and that the disease is in it's later stages and he's never seen anybody this far advanced. He said that he no longer knows what else to do with me except to go to either Dr. Kirkpatrick in Tampa or a doctor in Philadelphia. Well, since Tampa is closer...we decided to make an appointment with him. Dr. Patin also stated that he will contact Dr. Kirkpatrick and discuss my case with him and help as much as possible.

We did get an appointment with Dr. Kirkpatrick on November 4, 2008! He does alot of ketamine treatments....but..... since I had such a bad experience with my low-dose drip, I am going over there with an open mind and listen to what he has to say.

We will update you after we get back from Tampa!!

~Rebecca~

Rebecca's feet are a little swollen!!!!

This is how Rebecca's feet/legs are! She elevates them as much as she can. It's very painful to walk around like that!!!



She has a doctor appointment next Monday, October 13th, in Miami to talk to the doctor regarding the spinal cord stimulator. We will update it as soon as we find out what's next!

Thanks!

Jan

Sunday, October 5, 2008

Hello to all!!

I just want to thank everyone again for their support, it really helps me get through all the hard times!! So, please continue to keep all the emails coming (even if they are to my mom..lol!)!!

Not too much has been going on here except for my feet are swelling and I actually now have kankles. The swelling is from my knees down to my toes, in both legs, and also my right arm from my elbow to my shoulder (random, I know!).

I have decided to go with the spinal cord stimulator, since I have tried alot of the other options, including the most recently approved medical procedures. I am just waiting to hear from the doctor to see how soon they can put it in and then I will update my blog then.

Until next time.....

~Rebecca~